updates on the boys

Wow it has been awhile since I lasted posted....

Owen had two weeks without chemo treatment, and then a MRI last Thursday. We got his results from Dr. Cole, the neuroncologist, on Monday. The tumors have stayed stable and the contrast has become less bright. The doctor assured us they think this is a good thing, but has not found any research to explain exactly what it means. I have to do more research myself, but so far it is my understanding that NF affects children and adults so differently that there is much that is still unknown. Anyway, Owen continues on with the same plan of action. Four weeks of chemo, two weeks off, and he'll have his next MRI in three months to check on his progress. He is continuing to make progress with his gross motor skills...getting very close to walking and he is starting to even move around on his belly more, trying to scooch forward to grab for things. He sees his PT, Karen, every Monday before we head down to CHOP and he really works hard for her. He is scheduled to see the feeding team at CHOP in two weeks for an evaluation, hopefully we can get him eating more.

Joey's big news this past week...his football team played the half-time football game for the Temple game at Lincoln Financial Field, home of the Eagles. Driving down 95 on our way to the game, passing the stadium, Joey admits he was really scared because of all the people that would be there. But once he was sitting with all his teammates in the stands you could see how excited he was. On the field, he was jumping up and down hardly able to contain his excitement. What an incredible experience for all the boys. Tomorrow is Joey's last game of the season. I am pretty sure he is ready for it to be over for the season...I myself am a little sad.