"Pool"

Normally my little monkey wakes up shouting from his crib "Mamma" or "Dadda," this morning it was "Pool." The pool opened this past Saturday and we spent hours each day over the long weekend out in the sunshine. For three days now he has repeatedly been asking to "Go Pool!" Too bad it is only open on weekends until school lets out. This morning Joey and I got a kick out of watching Owen roaming around the house with Joey's goggles on...

On Friday. Joey and I took Owen to get his port accessed, flushed and an hour IV of Pentam. This was our first time back at CHOP since Owen has started to walk and he was just so pleased to be able to lead me around to all of his favorite things. We visited the fish tank, the statue of the runner, played video games with Joey, looked at the painting of the beach ball and blew kisses to the nurses. Joey was excited to go to Au-Bon-Pain for chicken noodle soup after Owen was finished....

Joey sharing with Joe his published book about Rocks at his school during "Breakfast with

Books."

Happy Mother's Day!

What a wonderful Mother's Day! A beautiful "I picked this out, Mom!" necklace, lovely cards and a homemade school project. My parents and in-laws' unnecessary but very appreciated gifts. A fun day spent with my mom, dad, nana and the kids at Castle Park.

It has been a busy few weeks...again I cannot believe how long it has been since I have posted. I WILL get better at this over the summer. Owen's MRI came back and showed that the tumors have remained stable. Owen will need to go to CHOP in the next couple weeks for some port-related meds and a check in with the neuro-oncologist and neuro-ophthalmologist but the chemo continues to be on hold...hopefully permanently! He started to take more steps about two weeks ago and now he is walking all over the place. We were leaving the gym this morning, my hands full and he walks right next to me to the doors. It is pretty unbelievable...he is finally eating and now walking!

So the weeks have gone by quickly...Dad did an amazing job trimming back all the trees in the front of our house...I ran the rainy Broad Street run with Alex and Jeff...soccer practices, soccer games...started the first course of my 2 1/2 year graduate program and I am feeling just a little overwhelmed with all the work that is due over the next eight weeks (I'm sure I'll rant more about that in another blog post) and Joey and I are counting down the days until summer break...27!!!!