...that makes it sound better! Owen finished his first cycle of Maintence yesterday. So instead of thinking he has 28 treatments left, and we will hopefully be finished next July, I am going to count down the cycles. So he has only seven cycles left. Woohoo! As usual he was an angel yesterday. Everything went well, just another long day. It took us 2 1/2 hours to get down to CHOP...I hate those roving work crews on 95 I do not know how I always seem to be on the highway when they are roving...and the pharmacy was having issues so we had to wait a LONG time for his drugs to be ordered. It is an interesting process. I would think that since he gets the same treatment every time he has an appointment that these things would be "ready" for us when we are scheduled to be in. But they can't order up his medicine until his blood counts are checked because if his counts are under he can't get treatment. But as always he handles it in stride.
I met a nice family yesterday. Joey plays video games with their son while we are in the waiting room. Turns out this six year old boy also has NF1 and was diagnosed around the same age as Owen. He is getting chemo treatment for a tumor in his hypothalamus. I have to admit it made me catch my breath, just the realization that NF will always be a part of Owen's life and we will never know what he will go through next. This is not something I worry about on a daily basis but I guess that is why this race I am participating in is so important to me. I know that it is important for Owen's future that a cure is found. Okay...so that should be enough motivation for me to get out there and do that 7 mile run tomorrow. I hope this is just my week eight rut because as I was running at 5am yesterday I thought this is killing me...seriously killing me!
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